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As someone caring for a person with an IRD it can be difficult to know where to go for help, but there are patient support and advocacy groups out there. These may be able to offer advice for supporting your loved one and can also help you in managing your journey with them. Some examples of these are listed below.


Link to a patient advocacy website

Downloadable resources

Welcome to

I’m a person with suspected inherited visual impairment

I’m a friend or family member of someone with suspected inherited visual impairment

I’m a healthcare professional


Information on this site is for a global audience and will not include information related
to specific referral centres. This is intended for local countries to add.
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