It looks like you are using an older version of Internet Explorer which is not supported. We advise that you update your browser to the latest version of Microsoft Edge, or consider using other browsers such as Chrome, Firefox or Safari.

Their diagnosis doesn’t
change who they are

Receiving a clinical diagnosis of an inherited retinal dystrophy, or IRD, such as
retinitis pigmentosa, Usher syndrome, or Stargardt disease can be a complete whirlwind.
And, as your loved one is newly diagnosed, you may have a lot of questions.

We hope to provide you with some answers and  make the process of learning
about IRDs as easy as possible. Remember, a diagnosis may be challenging,but it can
also bring people closer together. It’s all about taking small steps towards a better understanding
of each other’s needs, and making adjustments over time to help life run smoothly.

Welcome to

I’m a person with suspected inherited visual impairment

I’m a friend or family member of someone with suspected inherited visual impairment

I’m a healthcare professional


Information on this site is for a global audience and will not include information related
to specific referral centres. This is intended for local countries to add.
bubble image