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Receiving a clinical diagnosis of an inherited retinal dystrophy, or IRD, such as
retinitis pigmentosa, Usher syndrome, or Stargardt disease can be a complete whirlwind.
And, as your loved one is newly diagnosed, you may have a lot of questions.
We hope to provide you with some answers and make the process of learning
about IRDs as easy as possible. Remember, a diagnosis may be challenging,but it can
also bring people closer together. It’s all about taking small steps towards a better understanding
of each other’s needs, and making adjustments over time to help life run smoothly.
An introduction to what IRD is, what causes it, and how it can develop.
The process doctors use to diagnose IRD and how genetic testing can help.
Information about ongoing research into IRD and its treatment.
Documents to help you understand more about IRD and how you can support your loved one.