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Helpful information about IRD and what a diagnosis

means for you.


You don’t have to deal with a diagnosis of IRD alone. Talk to your doctor about your options and what forms of support might be available to you in adjusting to life with IRD.

Other people are living with the same issues and adapting to life with IRD. There are patient support and advocacy groups out there who may be able to help you and where you can speak to people who are going through the same experiences as you. You can find some of these listed below.

Link to a patient advocacy website

Welcome to

I’m a person with suspected inherited visual impairment

I’m a friend or family member of someone with suspected inherited visual impairment

I’m a healthcare professional


Information on this site is for a global audience and will not include information related
to specific referral centres. This is intended for local countries to add.
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