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Receiving a clinical diagnosis of an IRD such as retinitis pigmentosa, Usher syndrome, or Stargardt disease can be a complete whirlwind. Whether you think you might have an IRD or you're looking for information after a confirmed diagnosis, you are bound to have a lot of questions.
We hope to provide you with some answers and make the process of learning about IRD as easy as possible. But remember, an IRD doesn’t change who you are. Living with an IRD is about taking steps towards your goals and making adjustments along the way.
An introduction to what IRDs are, what causes them, and how they can develop.
How doctors diagnose IRD and the importance of genetic testing.
Information about ongoing research into IRD and its treatment.
Documents to help you understand more about IRD and how to talk to your doctor.